Friday, 10 February 2012

My story from misdiagnose to the correct GF diagnosis

This week I'm very excited to announce that my first guest post was published on Life Style Elements, the post shared my story of living as a coeliac. I thought I'd include this link for my non twitter followers.

I've been debating this week about which post to publish, I've decided on giving a brief overview and support organisations that can help with the various conditions I have or have been told I had in the past.

I'll start from the beginning, my first diagnosis by my old GP was IBS Irritable Bowel Syndrome, there are lots of symptoms of this disease which are very simialar to Coeliac disease. The main symptoms are Abdominal pain, fullness, gas, bloating, constipation and dirreahoea that have been present for 3 days for the past 3 months. Very similar to coeliac disese! Easy to see why a doctor who is not up to date on coeliac disease, or doesn't ask the correct question you can be misdiagnosed. Here is the link to the website I received the information on IBS

The second condition I have and have suffered from for many years is endometrosis, a condition that my mother also suffered from. This condition is a women's disease and is based around our monthly cycle, causing severe and debilitating pain each month, heavy periods, bloating, gas, changes in bowel movements and much more. Unless you are seeing a Gynecologist who is well versed on the condition you are often passed off as having 'women's problems', here is the website where I got alot of information from The scary thing with this condition is it can lead to low fertility which I also suffer from, a great doctor, who focuses on the condition and has experience in IVF, is the dr you want to see, here is the link to my dr

My other big symptom was anemia, which can also be a symptom of endometrosis. I suffered quite severely with anemia, when I finally got a blood test my levels where 4, and my bone storage and normal iron. Iron helps red blood cells transfer oxygen to the brain and body, thus making the sufferer very tired. I would have to lie down at work, I was unable to function, pale, dizzy and generally found it hard to concentrate! Here is a great website for more information about anemia I ended up having a session of iron injections, which helped but was referred to my gyno to answer why my iron was so low. Thankfully my great dr could see these
levels weren't from heavy periods and gave me a referral for a gastrologist! With a family
history of bowel cancer an endoscopy and colonscopy. A biopsy sample taken from my small bowel which resulted in a diagnosis of coeliac disease! The only way to control this disease is following a strict gluten free diet!

Coeliac disease is a heredity disease, as you must have 1-2 genes to have the disease. An early diagnosis is essential to causing as minimal damage as possible! If you notice any of the symptoms, please see your doctor and ask about tests. There is a blood teat, but the only conclusive way to diagnose the disease is by a biopsy from a colonscopy. I would highly recommend seeing a nutriontist, as coeliac disease can warrant you in Australia to a health care plan and a number of visits with a nutrionist at a reduced rate! I find cooking GF easy by each week, I've developed more confidence and have successfully modified a number of
recipes. My whole family cook GF for me and I know the questions to ask when eating out! It's not always guaranteed by works more than not! I find going to friends and families events hard at times, and always make sure I bring a GF dish or fill up on GF food before hand! I highly recommend that you visit the neatest GF expo coming to your state this year, they are free and filled with an abudance of information and food, I was blown away by the contact I made and information I found! For more information on this disease read this website and if your an Australian resident join this great association.

I hope that me sharing my personal story has given you the courage to contact your doctor about any of the symptoms. I know talking about these things can be embarrassing at tines, it is so important and can be life saving. I'd love to hear your story or thoughts about my personal post!